#slayingSIBO or Something Else? UPDATE

I mean, is it really that surprising that I’m hitting you with yet more diagnoses?

The #slayingSIBO saga began when, after two years of total digestive frustration, I want to a gastroenterologist and they made me blow into balloons and tested my breath and told me I have SIBO (you can check out all my posts om that, here).

Then I was told I may not have it because the pipes weren’t workin’ (if ya know what I mean) when I took the test, and told me to just take Miralax every day the rest of my life. I shot my best mean mug at the doc, and she said, well fine, you can take the antiobiotics anyway. (I apparently have an effective mean mug).

If you’ve been keeping up, you know I moved to working with a functional doctor after being completed unimpressed with this gastro, and I’ve been going through MORE tests, some that insurance won’t cover (Annoying. Hey BlueCross – I’m not getting my poop tested for vanity, just sayin’.)

The Update:

So after more and more tests, here’s what we know:

Finding #1: I have active EBV and some other mono-causing virus antibodies, and my body is having a hard time detoxing.

I had a “mono-like” illness in 2011, my sophomore year in college. It was awful. From that point until I got my tonsils out at the end of 2014, I had recurring strep infections every 3 months like clock-work. Once you have a virus like this, you always have it. It can go dormant and undetectable, but it can always flare up. So who knows how long I’ve been dealing with flare-ups from this… BUT we have to get it under control. When your immune system is compromised, everything goes to hell in a hand basket! And I’ve been hit with a double whammy – I have an autoimmune condition (Sjogren’s), so I have to take extra care here.

My liver enzymes are also elevated and my kidney function is less than ideal (which again I knew). This is probably due to the immune response and my toxin load from these nasty viruses, so basically I need to help my body with detoxing.

Solution:

Obviously there is no quick solution to this, but focusing on building and supporting my immune system is key right now. Some of the supplements I am taking are:

  • Colostrum (it’s gross)
  • Omega 3’s
  • Vitamin D
  • NAC
  • Milk Thistle
  • Zinc
  • A multi-vitamin
  • Selenium
  • L-Lysine
Results:

Well, I started the immune supplements only a month ago, so not much to report. Supplements take longer to react in your body, but I have noticed that I’m not dealing with as much swelling in my ankles (a weird symptom I had been noticing as of late), so I think that’s a positive sign! Will keep you posted.

Finding #2: My gut bacteria is all outta whack (duh).

No but really, the results from my stool test were very informative. Basically, I don’t have enough good bacteria, and I have some bad bacteria plus some candida.

The great thing about the test was that they tested different antimicrobials against the bad bacteria strains to see which ones would be the most effective in killing them. Not all antimicrobials kill all bad bacteria, so this was awesome the test went the extra mile so we are just shooting blindly! Made tat $500 just a little more worth it… just a little though.

THE GOOD NEWS: NO PARASITES!! AMAZING! That’s one thing I DON’T have. Praise.

So where are we at with the gut then?

Solution:

Again, this will be slow, and frustrating, but at least we have somewhat of a better pathway to go down with the new information. In addition to the immune support protocol, I’ll be starting a gut protocol with the following supplements:

  • L-Glutamine
  • OrthoBiotic (crazy strong probiotic)
  • GI Detox
  • Grapefruit Seed Extract
  • Butyrate
  • Biocidin
Results:

I’m waiting for my shipment to come, but I will keep you posted on how I am feeling. With the SIBO, i was a little concerned with taking a probiotic, so the plan is to start the antimicrobials (grapefruit seed extract and biocidin) and get to full strength before introducing the probiotic.

However, I do know that I can expect die-off symptoms, which will not be enjoyable. Basically, everything will get worse before it gets better. JOY.

With all this said:

I’ll be retiring the #slayingSIBO posts for now, since my health is encompassing more than just that. I’ll have to think of another catchy phrase for my journey – suggestions welcome in the comments!

IMPORTANT NOTE:

I did not include the brands or dosages of my supplements because everyone is different. If you are going through health issues similar to mine, I am happy to chat with you and provide my experiences, but please never take my protocol as something you can directly follow! Chat with your doctor 🙂

That’s all for now, folks!!

xx

happily Haleigh

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#slayingSIBO // general update

SO.

Here I am, 3 days after finishing my two-week round of Xifaxan, and I feel… the same.

In fact, I might feel worse? Because along with not finding relief, that ROUGH round of antibiotics left me with some fun side effects: breakouts, weird rashes, swelling in my limbs, worsened joint pain… super fun times, my friends!

Thankfully, I have another appointment with Dr. Nicole on Monday. The plan is to chat about anything she found in my bloodwork, and discuss about next steps (remember that super fun test I talked about previously? Yeah, that’s probably gonna go down LOL).

In the meantime, I have also secured an MRI for my chronic lower back pain and emailed a doctor about my toe pain (I was set to actually have a toe surgery in January, but getting a new job threw a wrench in that!). Not only is my original, right toe still hurting, but now my left one has started bothering me. OOF.

Today in Chicago, it is snowing. Yes, in April. And honestly, while I’m not THRILLED about it, it’s given me the perfect excuse to take this Saturday and truly do nothing. As I’m typing this, I’m laying in bed in the middle of the afternoon with no plans for the rest of the evening, and it’s glorious. I did start my day off nicely though – woke up for a workout where I met a new friend, grabbed a coffee, went to my first therapy session, and wandered Whole Foods just because (does anyone else do this?! Didn’t even buy anything – I just love it!)

Tomorrow, I’ll be attending a restorative yoga session – yoga, something that doctors have told me time and time again to partake in for stress management, and something I usually blow off. However, in the spirit of working on my mental health, I’m going to try. Again.

So anyway, this post was really not substantial because truly, there has not been much change. More to come, and I’ll keep you all posted, but until then, I hope your life is beautiful and your days are wonderful.

xx

happily Haleigh

Slaying SIBO:

Answers. I finally have some answers. I finally have evidence that some of the extreme, debilitating, social-life stealing, soul-sucking symptoms I’ve been experiencing for the past two years are not in my head, but can indeed be backed up by scientific proof and number-defining results.

It’s freeing, in a sense, but the diagnosis itself is anything but, because the diagnosis of SIBO means I have a long road of healing ahead of me.

On finally being diagnosed, living with SIBO, the road ahead, and how it all makes sense.

Answers. I finally have some answers. I finally have evidence that some of the extreme, debilitating, social-life stealing, soul-sucking symptoms I’ve been experiencing for the past two years are not in my head, but can indeed be backed up by scientific proof and number-defining results.

It’s freeing, in a sense, but the diagnosis itself is anything but, because the diagnosis of SIBO means I have a long road of healing ahead of me.

SIBO – Small Intestine Bacteria Overgrowth (sexy, I know, right?)

In a nutshell, SIBO is when there is too much bacteria in the small intestine. There are a myriad of reasons why this can happen (will get to this in another post later this week), but basically, those little buggers are NOT supposed to be there!

Where are they supposed to be? Well, the bacteria is supposed to live happily in your large intestine, but they’ve found their way to the wrong home!

Why is SIBO a big problem?

Well, SIBO is an issue because it causes a lot of symptoms and creates a cycle of poor digestion, leading to issues throughout your entire body (remember, the gut-brain connection is a real thing).

With the bacteria in your small intestine, they start eating the food you eat too early in the digestion process, and the food ferments in your small intestine, creating gas that affects your digestion – primarily affecting the motility of your digestive system. This can result in anything from the runs, being backed up, or a mixture of both (yep, we’re getting real here, people!). This becomes a perpetual cycle that is very hard to break.

I should have known it was SIBO a while ago (and honestly, I did):

If you’re close to me, you’ll know I’ve been dealing with a lot of health issues for a while (2+ years).

Some of the symptoms I’ve been dealing with:

  • Daily bloating (even upon waking)
  • Abdominal pains and cramps (sometimes debilitating to the point I have to just lay in bed)
  • Chronic constipation
  • General digestive issues (regardless of what foods I eat – y’all know I’m a healthy gal!)
  • Missing period since March 2017 (around the same time my extreme digestive issues started)
  • Joint pain
  • Frequent injuries
  • General inflammation
  • Water retention/swelling
  • Adrenal fatigue
  • Hormonal imbalances (reproductive hormones as well as neurotransmitters)
  • Bad skin – skin rashes, peeling skin on face along with acne
  • Hair loss
  • General lack of zest for life
  • Resulting anxiety, loss of confidence, sadness, etc

ALL of these symptoms make sense – if your digestion is chronically damaged, your whole body is sick! It’s stressed! It’s trying so hard to function how it should, but it just can’t keep up.

While I’ve been experiencing these, I have been to SO many doctors (and have spent so much money!) Normal doctors, naturopaths, endocrinologists, OBGYNs, etc. They could all tell me that “yes, you have hormonal imbalances”, “yes, you have no period but you don’t have PCOS”, “yes, your cortisol levels are extremely low”, “yes, you have food intolerances (that you’ve never had before)” — but until this point we haven’t known why.

I tried gaining weight to get my period back, I did elimination diets to cut out food intolerances (I’ve been GF/DF apart from the one off occasion these past 2 years), I took supplements – nothing has helped.

IN FACT… I’ve probably been making it worse this WHOLE. TIME.

Why do I say that? Well, let’s think about our current health-crazed, wellness-seeking world we live in. We live in a world with instant access to information, which don’t get me wrong, can be GREAT. However, this instant access allows for the ability for people to share information at lightning speed, whether they are qualified to share or not, and fads quickly take hold.

Think probiotics, prebiotics, fermented food – all things that have been extremely hyped up in the last few years. “WE NEED MORE GUT BACTERIA! Gut issues? PROBIOTICS! KEFFIR! KIMCHI! KOMBUCHA!”

But the thing is… someone with SIBO should NOT be feeding his/her body with MORE bacteria!! THAT IS NOT HEALTHY FOR THAT INDIVIDUAL!

But of course, without answers until now, I fell prey to trying all the probiotics, prebiotics and fermented things on the market, praying they would be the solution to my issues — I was really just fueling the fire. GOSH DARN IT!

So how did I finally find out I have SIBO?

This year I started a new job, and it has been such a blessing. My insurance through my new company is stellar, and I know I am so, so lucky. Because of this, I finally was able to see a gastroenterologist.

In my first visit with her, she felt my abdomen and noted that I did indeed have a lot of gas (like yeah, lady, I KNOW THAT’S WHY I’M HERE LOL!). She did initial blood work and an abdominal x-ray. Blood work came back normal – i.e. no gluten allergy or anything major like that. The x-ray showed that I was extremely backed up (again, knew this).

She prescribed me the cleanse that you take prior to a colonoscopy to help clear me out, and if I still didn’t feel well after this, I was to try the elimination diet again to see if it was any of the food I was eating, and then I would have a follow-up with her in April.

I completed the cleanse on a Sunday – HOLY MOLY, DON’T DO THIS UNLESS YOU HAVE TO. This was like, 3-4 days of misery for me. The cramping and discomfort eventually passed, but I was to continue taking Miralax daily. That week I felt much better, until I just didn’t again. Basically, I noticed if I skip one day of Miralax, it puts me into a tailspin again. Because of this, I reached out to her and explained the cleanse hadn’t helped and I was still miserable, and she just decided to order the SIBO test for me right away. (WAY TO BE PROACTIVE, SIS, LOVE IT.)

The Test:

The test itself was simple. The prep was a little annoying, but honestly not horrible.

The purpose of the test is to test your hydrogen and methane levels in your small intestine. To get to the point, high levels of either of these gases indicates SIBO.

The day before, you are only allowed to eat plain protein, white rice, white bread, and plain coffee – SO FUN. Then, you fast for 12 hours prior to the start of your test.

The test is 3 hours long, consisting of blowing into balloons every 15 minutes after drinking a solution of lactulose.

I’ll chat more about the specifics of the test in a later post.

My Results:

I had done some reading on SIBO prior to my testing (remember, I said I had suspected this a while ago), and from what I had read, I expected my methane levels to be elevated.

Sure enough, my results were posted the day after the test, and I am in fact methane dominant. My resting state measured at 58ppm and maxed out at 98ppm (for reference, anything over 10ppm is considered to be evidence of SIBO).

SO NO WONDER I HAVE BEEN IN MISERY!! IT’S NOT IN MY HEAD! – That’s the relieving part. The daunting part is taking this on…

Treatment:

I’ll chat more in detail about this in a later post, but generally, treatment is not simple. There is not a magic pill to fix this. This is largely because SIBO is not a primary condition, but is secondary, meaning it is caused my something else — something you have to figure out (aka MORE tests). In general, you’re looking at multiple rounds of antibiotics, supplements and diet/lifestyle changes, and praying for no relapses.

So, I mentioned I should have known it was SIBO – why do I think I have developed this? I have a few theories for me personally:

  • I had either an extreme case of the flu, or more likely, food poisoning (#1 cause of SIBO), in February 2017 – right before all of my extreme symptoms started
  • I’ve taken NSAIDs all my life for chronic headaches – NSAIDs are notoriously damaging to the gut lining
  • I had mono in college
  • I was plagued with strep throat every 3 months in college until I got my tonsils out in 2014 – so a lot of antibiotics in my life time
  • I already have an autoimmune condition – Sjogren’s.
  • BASICALLY I AM A BREEDING GROUND FOR THIS NONSENSE.

So, what’s next?

Well, I have my follow-up appointment with my doctor on April 5th. Until then, I’ll be doing my own research to come prepared for self-advocacy.

I have already started curating resources and completing my own research, and I’ll be updating this blog with my findings so that I can help others experiencing this! You can follow my journey on here, as well as my social media platforms, and I’ll be utilizing the hashtag: #slayingsibo

I want to hit this head on, and I’m willing to do just about anything to #slaysibo.

xo

happily Haleigh