#slayingSIBO or Something Else? UPDATE

I mean, is it really that surprising that I’m hitting you with yet more diagnoses?

The #slayingSIBO saga began when, after two years of total digestive frustration, I want to a gastroenterologist and they made me blow into balloons and tested my breath and told me I have SIBO (you can check out all my posts om that, here).

Then I was told I may not have it because the pipes weren’t workin’ (if ya know what I mean) when I took the test, and told me to just take Miralax every day the rest of my life. I shot my best mean mug at the doc, and she said, well fine, you can take the antiobiotics anyway. (I apparently have an effective mean mug).

If you’ve been keeping up, you know I moved to working with a functional doctor after being completed unimpressed with this gastro, and I’ve been going through MORE tests, some that insurance won’t cover (Annoying. Hey BlueCross – I’m not getting my poop tested for vanity, just sayin’.)

The Update:

So after more and more tests, here’s what we know:

Finding #1: I have active EBV and some other mono-causing virus antibodies, and my body is having a hard time detoxing.

I had a “mono-like” illness in 2011, my sophomore year in college. It was awful. From that point until I got my tonsils out at the end of 2014, I had recurring strep infections every 3 months like clock-work. Once you have a virus like this, you always have it. It can go dormant and undetectable, but it can always flare up. So who knows how long I’ve been dealing with flare-ups from this… BUT we have to get it under control. When your immune system is compromised, everything goes to hell in a hand basket! And I’ve been hit with a double whammy – I have an autoimmune condition (Sjogren’s), so I have to take extra care here.

My liver enzymes are also elevated and my kidney function is less than ideal (which again I knew). This is probably due to the immune response and my toxin load from these nasty viruses, so basically I need to help my body with detoxing.

Solution:

Obviously there is no quick solution to this, but focusing on building and supporting my immune system is key right now. Some of the supplements I am taking are:

  • Colostrum (it’s gross)
  • Omega 3’s
  • Vitamin D
  • NAC
  • Milk Thistle
  • Zinc
  • A multi-vitamin
  • Selenium
  • L-Lysine
Results:

Well, I started the immune supplements only a month ago, so not much to report. Supplements take longer to react in your body, but I have noticed that I’m not dealing with as much swelling in my ankles (a weird symptom I had been noticing as of late), so I think that’s a positive sign! Will keep you posted.

Finding #2: My gut bacteria is all outta whack (duh).

No but really, the results from my stool test were very informative. Basically, I don’t have enough good bacteria, and I have some bad bacteria plus some candida.

The great thing about the test was that they tested different antimicrobials against the bad bacteria strains to see which ones would be the most effective in killing them. Not all antimicrobials kill all bad bacteria, so this was awesome the test went the extra mile so we are just shooting blindly! Made tat $500 just a little more worth it… just a little though.

THE GOOD NEWS: NO PARASITES!! AMAZING! That’s one thing I DON’T have. Praise.

So where are we at with the gut then?

Solution:

Again, this will be slow, and frustrating, but at least we have somewhat of a better pathway to go down with the new information. In addition to the immune support protocol, I’ll be starting a gut protocol with the following supplements:

  • L-Glutamine
  • OrthoBiotic (crazy strong probiotic)
  • GI Detox
  • Grapefruit Seed Extract
  • Butyrate
  • Biocidin
Results:

I’m waiting for my shipment to come, but I will keep you posted on how I am feeling. With the SIBO, i was a little concerned with taking a probiotic, so the plan is to start the antimicrobials (grapefruit seed extract and biocidin) and get to full strength before introducing the probiotic.

However, I do know that I can expect die-off symptoms, which will not be enjoyable. Basically, everything will get worse before it gets better. JOY.

With all this said:

I’ll be retiring the #slayingSIBO posts for now, since my health is encompassing more than just that. I’ll have to think of another catchy phrase for my journey – suggestions welcome in the comments!

IMPORTANT NOTE:

I did not include the brands or dosages of my supplements because everyone is different. If you are going through health issues similar to mine, I am happy to chat with you and provide my experiences, but please never take my protocol as something you can directly follow! Chat with your doctor 🙂

That’s all for now, folks!!

xx

happily Haleigh

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I may just be the sickest healthy person you know…

“You eat so well!”

“You crush it in the gym!”

“You’re young and look so healthy though!”

All comments that have been said to me — and yet, here I am, about to turn 27 and feeling like an 80 year old whose life has been ripped away from her far too soon with every new medical discovery and diagnosis I receive.

Yesterday, I had my second appointment with Dr. Nicole. If you’ve been keeping up, you’ll remember her to be my new functional doctor. Since my first visit with her, I’ve finished my round of Xifaxan prescribed by my no-longer gastro for the SIBO (and no, I’m not feeling magically better as I had wished) and have also completed more bloodwork – something pretty routine to me by this point.

At my appointment yesterday, we went over the new bloodwork Dr. Nicole had requested, and boy, it was quite the overwhelming experience. I’ll be honest, my happy-go-lucky, can-do attitude broke a little yesterday.

Dr. Nicole, is great – let’s not get that confused. She sat with me and talked through all the findings, and summarized everything into her plan of action very clearly. She answered all my questions, and is just a great human overall. But the information she shared was less than appealing, and although knowledge is power, yesterday, knowledge just felt like a ton of bricks.

Picture this: A movie moment — cue the dramatic and triumphant music (you know the one), a track-star about to win the race, smiling ear to ear, he makes his way toward the finish line in slow motion. The end is in sight, the gold so close he can taste it, and out of nowhere, he starts to trip and his smile fades slowly. Zoom into his ankles turning this way and that way, his knees knocking, now back up to his face that has now gone from a look of victory to full-on defeat before cutting back to real time with the winner-to-be face-planted on the track with a furry of feet trampling him to take his place for first, second and third as he just lays there, defeated.

That is how I felt after my appointment yesterday. When I had the SIBO diagnosis, I felt like I was on my way to victory – FINALLY! Something to blame all my problems on, and medication to potentially fix it! However, the antibiotics haven’t left me feeling any better (deep-down I knew that 2 weeks wouldn’t truly make a difference). But today, I found out that in addition to the SIBO, I have candida, and have also been living with 3 chronic viruses in my system. THREE.

Epstein Barr Virus (two strands of it, actually), some other mono-causing virus, and herpes (no, not that kind). And before you ask, NO I AM NOT CONTAGIOUS.

Am I totally shocked? I mean, not really. Yes in the sense that these viruses are still in my system, but I had mono in college my sophomore year (2012), and since then, have struggled a lot with my health.

In addition to the viruses, I also found a few different things were off with my autoimmune response, candida, some vitamin levels, thyroid levels, etc.

Basically, I’m the sickest healthy person you know. What I mean by that is I do everything right. I do my best to eat well, I exercise regularly, and just generally take good care of myself, and it’s not enough. And isn’t that frustrating? It is. I really can’t even put into words at the moment just how draining it feels.

Dr. Nicole has a protocol for me which I’ll chat about in a different post, but for now all I’ll say is this: it’s a lot of supplements that of course insurance won’t cover, so of course I’m starting to stress about money. But stress isn’t good. How do I not stress? NOW I’M STRESSED ABOUT STRESSING. (Do you see how for a type A personality, this can be a black hole?)

Anyway, the short of it is this: start the supplement protocol, complete the stool test (which cost me $500 – yikes), follow a candida diet, and follow-up in 5 weeks when the aforementioned test results are in.

I know this post was a little more negatively toned than what I typically convey, but I’m having a moment. I feel like I am wasting the prime years of my life just trying to heal myself. At 27, I should be going out and enjoying life and spending my money on fun experiences and meeting new people — not worrying about spending my money on supplements and how much sugar and carbs I’m eating and if I’m doing everything to lower my viral load and kill yeast and bacteria… UGH. Somedays I just feel like an old shell, and it’s hard, because that is NOT me. I used to be, and want to be, a very full person. But it’s hard some days, and that’s just the truth of it.

With my birthday approaching in 2 weeks (May 11th if ya wanna set a calendar reminder!), I feel so conflicted. I know I’ll want to celebrate, but I’ll feel guilty knowing it won’t be good for my body – but am I supposed to just not celebrate? WHERE IS THE FUN IN THAT?!

Life isn’t fair, but I’m trying to remember that there is a lesson in all that we experience. What is meant for you will find you when it’s right for you.

Look out for my next post on my protocol and a few more deep-dive details (if you’re following me for specific health interests!), but until next time…

xx

happily Haleigh

#slayingSIBO // general update

SO.

Here I am, 3 days after finishing my two-week round of Xifaxan, and I feel… the same.

In fact, I might feel worse? Because along with not finding relief, that ROUGH round of antibiotics left me with some fun side effects: breakouts, weird rashes, swelling in my limbs, worsened joint pain… super fun times, my friends!

Thankfully, I have another appointment with Dr. Nicole on Monday. The plan is to chat about anything she found in my bloodwork, and discuss about next steps (remember that super fun test I talked about previously? Yeah, that’s probably gonna go down LOL).

In the meantime, I have also secured an MRI for my chronic lower back pain and emailed a doctor about my toe pain (I was set to actually have a toe surgery in January, but getting a new job threw a wrench in that!). Not only is my original, right toe still hurting, but now my left one has started bothering me. OOF.

Today in Chicago, it is snowing. Yes, in April. And honestly, while I’m not THRILLED about it, it’s given me the perfect excuse to take this Saturday and truly do nothing. As I’m typing this, I’m laying in bed in the middle of the afternoon with no plans for the rest of the evening, and it’s glorious. I did start my day off nicely though – woke up for a workout where I met a new friend, grabbed a coffee, went to my first therapy session, and wandered Whole Foods just because (does anyone else do this?! Didn’t even buy anything – I just love it!)

Tomorrow, I’ll be attending a restorative yoga session – yoga, something that doctors have told me time and time again to partake in for stress management, and something I usually blow off. However, in the spirit of working on my mental health, I’m going to try. Again.

So anyway, this post was really not substantial because truly, there has not been much change. More to come, and I’ll keep you all posted, but until then, I hope your life is beautiful and your days are wonderful.

xx

happily Haleigh

On to the next… #slayingSIBO

As hopeful as I was, I should have known the appointment would be frustrating, leading me to the search of yet another doctor.

Well, it’s Friday, and thus, I had my follow-up appointment with my GI doctor about my SIBO results.

As hopeful as I was, I should have known the appointment would be frustrating, leading me to the search of yet another doctor.

So here’s The Skinny:

I walk into my appointment, expecting to see my doctor. Instead some tall, slightly dopey looking man walks in and introduces himself as a resident, and then proceeds to ask me about how I’ve been feeling. I’ve never interacted with this man, so I have to go through my entire medical history… AGAIN.

Talk about frustrating. While speaking with him, I shared that at one point since my last appointment, I had stopped taking Miralax for one day, and due to that, was dealing with constipation again. In fact I was dealing with it when I took the breath test. Looking back, I should have just left this tidbit out.

Anyway, I asked all my questions I came prepared with:

  • Antibiotics:
    • Q: Is it best to dose Xifaxin with Neomycin since I read it was most effective for Methane dominance?
    • A: I haven’t heard of that, but I’ll ask the doctor.
  • Diet:
    • Q: Should I start a lowfodmap diet while taking antibiotics or after?
    • A: No definitive answer.
  • Prokinetics:
    • Q: I read that these may be useful in cases of constipation – should we consider this?
    • A: Mmm, probably not, we can talk about that later.

He asked me a series of questions regarding my stress levels, diet, etc. then went to talk to the doctor.

My doctor comes in and tells me that they no longer know if I have SIBO. WHAT.

She says that since I was dealing with constipation during my breath test, it could have been a false positive. She then said she’d like to just continue treating my constipation with Miralax, saying it’s fine because they give it to pregnant women all the time.

I straight up looked at her and asked “So, you’re not prescribing me the antibiotic?” She looked a little flustered and asked “Well, the thing to note is if you feel bloated even when you’re not constipated…” and to that I said….

YES. Look, I have been dealing with this for 2 years. I’m uncomfortable when I wake up, and worse when I go to bed. No matter what I eat, what I do.

She answers “Okay, then we’ll give it to you!” *insert eyeroll*

I then asked: “What does follow up look like? Do we need to retest to ensure it’s gone”

Response: “No, no protocol – we just treat the symptoms.”

I had so many problems with this appointment:

  1. The fact that they sent a resident in first really bothered me.
  2. The fact that the doctor was so changeable really bothered me.
  3. The fact that they were fine with saying I should just take Miralax the rest of my life really bothered me. This means my body isn’t working right!!
  4. She told me I was not a person at risk for SIBO, when honestly she never took into account all of my other health issues that most DEFINITELY have put me at risk for this.

This was such a typical Western Medicine approach. I was hoping for so much more because the doctor seemed so proactive in getting me the test in the first place, but the follow-through is lacking.

I was very emotional this morning, but I’m trying to take the positive out of it and no that this experience served its purpose, and now it’s just time to move on. I got the antibiotic out of it, and I’ll start there, but now it’s time to find a functional doctor in Chicago (who accepts insurance) who can help me with the rest of the process.

Another bump in the road, but what’s new!

Stay positive people!

xo

happily Haleigh

The Waiting Game… #slayingSIBO

Have you ever been told you’re a ruminator?

Well, I have been one all. my. life. I was born a type-A, worry wart of a child — truly, I tell you it’s a miracle I’ve made it to age 26 without becoming a total basket case. The self-induced stress I have put my body through has probably primed me for SIBO!

Have you ever been told you’re a ruminator?

(I’ll give you time to google “ruminate”)

Well, I have been one all. my. life. I was born a type-A, worry wart of a child — truly, I tell you it’s a miracle I’ve made it to age 26 without becoming a total basket case. The self-induced stress I have put my body through has probably primed me for SIBO!

At 26, almost 27, I will say that I have made VAST improvements in my almost obsessive ruminating behaviors. I mean, I no longer spend hours on hours on WebMD… just short half hour periods here and there (hey, old habits die hard, ya know?)

But I swear I’m not a hypochondriac – I am just innately in tune with my body, and I know when something’s not right. And finally, my persistence and “worry” has brought me some bonafide truth and answers.

Unfortunately, the time between when I received my test results and my follow-up with my doctor on Friday is a week. ONE WHOLE WEEK. Do you know how much time that is for me to think about this, worry about this, and GOOGLE THIS?

A lot. But the waiting game is to my favor, really, because I have been deep-diving into the world of SIBO and how I am about to kick this thing’s butt. Receiving this diagnosis can be overwhelming. The scarcity yet vastness of information on SIBO can be truly mind-boggling.

Because of this, I wanted to share a comprehensive short list of resources I’ve found in my research that I have found extremely helpful thus far incase anyone else feels lost in the midst of a SIBO diagnosis! I am by no means an expert (yet), but I’ve already learned a lot. I still want to do more research on more areas, and as I learn, I’ll post on the blog.

You can find that list HERE 🙂

While I wait for Friday to come (two more days!!), I have already started to make some changes in my life to start truly healing and get my life back. It’s amazing how news like this can really spur you to assess your life.

  1. I’ve spent a lot of time reflecting this week – – thinking about what and who causes me stress, and better yet, what and who brings me joy.
  2. I’ve been extremely self-aware. I’ve taken care to notice every feeling and thought that I’ve experienced this week to help me notice things like stressors and dark places in my mind (so I can work on fixing them!)
  3. I made an appointment with a therapist – not for anything specific, but from what I’ve been reading, stress management will be VITAL in helping cure SIBO, and honestly, I’ve never really been that great at stress management… I like to think I’m a rockstar at suppressing it though 🙂
  4. DANCE PARTIES: Yes, I’ve started having a dance party to music I used to love in my teenage years (think Hannah Montana and Jonas Brothers) every morning before I leave for work, and honestly it just MAKES. YOU. HAPPY. Try it.
  5. Gratitude. Through all of this, I’m trying to be grateful. I’m trying to be grateful for the fact that it could always be something worse, and I’m trying to be grateful for the fact that maybe this will lead me to a better quality of life in the long-run.

I know we all love a weekend, but especially this week, Friday can’t come soon enough!

I’ll be sure to update the blog after my appointment.

Until then,

xo

happily Haleigh

My SIBO Resource Shortlist: #slayingSIBO

Here you will find a running list of resources I find extremely helpful in understanding and slaying SIBO! I’ll keep this updated as I stumble upon anything new!

Doctors You Should Know:

  • Dr. Will Cole
  • Allison Siebecker

Websites and Blogs:

www.siboinfo.com

www.feedmephoebe.com/

www.chriskresser.com

www.bellalindemann.com

Podcasts:

Instagram:

The following are a few accounts of people who either post about SIBO in depth, or who are experiencing it first hand!

  • @phoebelapine
  • @katie_roeser
  • @lilsipper
  • @kirstenswalesnaturopath
  • @shylahmay
  • @gratitude_project
  • @graves_disease_sibo_warrior
  • @jordynliftlove
  • @vince_pitstick

Hashtags:

  • #SIBO
  • #SIBOdiet
  • #slayingSIBO 😉
  • #lowfodmap

Reddit:

https://www.reddit.com/r/SIBO/

Facebook Groups:

Pinterest:

Informational Documents:

http://www.nutritionaltherapyconference.com/wp-content/uploads/2017/03/SIBO-Overview-Allison-Siebecker.pdf?fbclid=IwAR1s5TnR4B7uKAfaFa5B1PCRR5lpUFH9jkF7uAXESdtsRrirP5l3xHLI4A8

Slaying SIBO:

Answers. I finally have some answers. I finally have evidence that some of the extreme, debilitating, social-life stealing, soul-sucking symptoms I’ve been experiencing for the past two years are not in my head, but can indeed be backed up by scientific proof and number-defining results.

It’s freeing, in a sense, but the diagnosis itself is anything but, because the diagnosis of SIBO means I have a long road of healing ahead of me.

On finally being diagnosed, living with SIBO, the road ahead, and how it all makes sense.

Answers. I finally have some answers. I finally have evidence that some of the extreme, debilitating, social-life stealing, soul-sucking symptoms I’ve been experiencing for the past two years are not in my head, but can indeed be backed up by scientific proof and number-defining results.

It’s freeing, in a sense, but the diagnosis itself is anything but, because the diagnosis of SIBO means I have a long road of healing ahead of me.

SIBO – Small Intestine Bacteria Overgrowth (sexy, I know, right?)

In a nutshell, SIBO is when there is too much bacteria in the small intestine. There are a myriad of reasons why this can happen (will get to this in another post later this week), but basically, those little buggers are NOT supposed to be there!

Where are they supposed to be? Well, the bacteria is supposed to live happily in your large intestine, but they’ve found their way to the wrong home!

Why is SIBO a big problem?

Well, SIBO is an issue because it causes a lot of symptoms and creates a cycle of poor digestion, leading to issues throughout your entire body (remember, the gut-brain connection is a real thing).

With the bacteria in your small intestine, they start eating the food you eat too early in the digestion process, and the food ferments in your small intestine, creating gas that affects your digestion – primarily affecting the motility of your digestive system. This can result in anything from the runs, being backed up, or a mixture of both (yep, we’re getting real here, people!). This becomes a perpetual cycle that is very hard to break.

I should have known it was SIBO a while ago (and honestly, I did):

If you’re close to me, you’ll know I’ve been dealing with a lot of health issues for a while (2+ years).

Some of the symptoms I’ve been dealing with:

  • Daily bloating (even upon waking)
  • Abdominal pains and cramps (sometimes debilitating to the point I have to just lay in bed)
  • Chronic constipation
  • General digestive issues (regardless of what foods I eat – y’all know I’m a healthy gal!)
  • Missing period since March 2017 (around the same time my extreme digestive issues started)
  • Joint pain
  • Frequent injuries
  • General inflammation
  • Water retention/swelling
  • Adrenal fatigue
  • Hormonal imbalances (reproductive hormones as well as neurotransmitters)
  • Bad skin – skin rashes, peeling skin on face along with acne
  • Hair loss
  • General lack of zest for life
  • Resulting anxiety, loss of confidence, sadness, etc

ALL of these symptoms make sense – if your digestion is chronically damaged, your whole body is sick! It’s stressed! It’s trying so hard to function how it should, but it just can’t keep up.

While I’ve been experiencing these, I have been to SO many doctors (and have spent so much money!) Normal doctors, naturopaths, endocrinologists, OBGYNs, etc. They could all tell me that “yes, you have hormonal imbalances”, “yes, you have no period but you don’t have PCOS”, “yes, your cortisol levels are extremely low”, “yes, you have food intolerances (that you’ve never had before)” — but until this point we haven’t known why.

I tried gaining weight to get my period back, I did elimination diets to cut out food intolerances (I’ve been GF/DF apart from the one off occasion these past 2 years), I took supplements – nothing has helped.

IN FACT… I’ve probably been making it worse this WHOLE. TIME.

Why do I say that? Well, let’s think about our current health-crazed, wellness-seeking world we live in. We live in a world with instant access to information, which don’t get me wrong, can be GREAT. However, this instant access allows for the ability for people to share information at lightning speed, whether they are qualified to share or not, and fads quickly take hold.

Think probiotics, prebiotics, fermented food – all things that have been extremely hyped up in the last few years. “WE NEED MORE GUT BACTERIA! Gut issues? PROBIOTICS! KEFFIR! KIMCHI! KOMBUCHA!”

But the thing is… someone with SIBO should NOT be feeding his/her body with MORE bacteria!! THAT IS NOT HEALTHY FOR THAT INDIVIDUAL!

But of course, without answers until now, I fell prey to trying all the probiotics, prebiotics and fermented things on the market, praying they would be the solution to my issues — I was really just fueling the fire. GOSH DARN IT!

So how did I finally find out I have SIBO?

This year I started a new job, and it has been such a blessing. My insurance through my new company is stellar, and I know I am so, so lucky. Because of this, I finally was able to see a gastroenterologist.

In my first visit with her, she felt my abdomen and noted that I did indeed have a lot of gas (like yeah, lady, I KNOW THAT’S WHY I’M HERE LOL!). She did initial blood work and an abdominal x-ray. Blood work came back normal – i.e. no gluten allergy or anything major like that. The x-ray showed that I was extremely backed up (again, knew this).

She prescribed me the cleanse that you take prior to a colonoscopy to help clear me out, and if I still didn’t feel well after this, I was to try the elimination diet again to see if it was any of the food I was eating, and then I would have a follow-up with her in April.

I completed the cleanse on a Sunday – HOLY MOLY, DON’T DO THIS UNLESS YOU HAVE TO. This was like, 3-4 days of misery for me. The cramping and discomfort eventually passed, but I was to continue taking Miralax daily. That week I felt much better, until I just didn’t again. Basically, I noticed if I skip one day of Miralax, it puts me into a tailspin again. Because of this, I reached out to her and explained the cleanse hadn’t helped and I was still miserable, and she just decided to order the SIBO test for me right away. (WAY TO BE PROACTIVE, SIS, LOVE IT.)

The Test:

The test itself was simple. The prep was a little annoying, but honestly not horrible.

The purpose of the test is to test your hydrogen and methane levels in your small intestine. To get to the point, high levels of either of these gases indicates SIBO.

The day before, you are only allowed to eat plain protein, white rice, white bread, and plain coffee – SO FUN. Then, you fast for 12 hours prior to the start of your test.

The test is 3 hours long, consisting of blowing into balloons every 15 minutes after drinking a solution of lactulose.

I’ll chat more about the specifics of the test in a later post.

My Results:

I had done some reading on SIBO prior to my testing (remember, I said I had suspected this a while ago), and from what I had read, I expected my methane levels to be elevated.

Sure enough, my results were posted the day after the test, and I am in fact methane dominant. My resting state measured at 58ppm and maxed out at 98ppm (for reference, anything over 10ppm is considered to be evidence of SIBO).

SO NO WONDER I HAVE BEEN IN MISERY!! IT’S NOT IN MY HEAD! – That’s the relieving part. The daunting part is taking this on…

Treatment:

I’ll chat more in detail about this in a later post, but generally, treatment is not simple. There is not a magic pill to fix this. This is largely because SIBO is not a primary condition, but is secondary, meaning it is caused my something else — something you have to figure out (aka MORE tests). In general, you’re looking at multiple rounds of antibiotics, supplements and diet/lifestyle changes, and praying for no relapses.

So, I mentioned I should have known it was SIBO – why do I think I have developed this? I have a few theories for me personally:

  • I had either an extreme case of the flu, or more likely, food poisoning (#1 cause of SIBO), in February 2017 – right before all of my extreme symptoms started
  • I’ve taken NSAIDs all my life for chronic headaches – NSAIDs are notoriously damaging to the gut lining
  • I had mono in college
  • I was plagued with strep throat every 3 months in college until I got my tonsils out in 2014 – so a lot of antibiotics in my life time
  • I already have an autoimmune condition – Sjogren’s.
  • BASICALLY I AM A BREEDING GROUND FOR THIS NONSENSE.

So, what’s next?

Well, I have my follow-up appointment with my doctor on April 5th. Until then, I’ll be doing my own research to come prepared for self-advocacy.

I have already started curating resources and completing my own research, and I’ll be updating this blog with my findings so that I can help others experiencing this! You can follow my journey on here, as well as my social media platforms, and I’ll be utilizing the hashtag: #slayingsibo

I want to hit this head on, and I’m willing to do just about anything to #slaysibo.

xo

happily Haleigh